Authors
P Curzon, A Macbrayne, H Soyel, D Marsh, N Fenton, C Pitzalis, F Humby
Publication date
2023/4/24
Description
Background/Aims
Rheumatoid arthritis (RA) outcomes have significantly improved with the treat-to-target paradigm, however this necessitates intensive monitoring. Demand outstrips capacity in rheumatology services, making Mobile Health (mHealth) an attractive prospect. However, software developers often design without understanding the needs of ultimate users, solving non-existent problems. EULARʼs ʻPoints to Considerʼ for remote care specifies that interventions “should be developed in collaboration with all stakeholders including the healthcare team⋯ and people with RMDs” as an overarching principle. This study sought to understand existing challenges for end-users, how technology might support care, and the perceived barriers.
Methods
Semi-structured interviews were devised collaboratively between Rheumatologists and Computer scientists, informed by discussions with an RA patient group. Key focus topics included daily life, flares, pain management, medications, clinic appointments, and perceived opportunities and barriers. People> 18 years old with a diagnosis of RA were recruited whilst awaiting appointments, & in the day unit at Mile End Hospital (Barts Health NHS Trust). Clinicians were recruited from multiple centres across London & South-East England. The study was registered (CMPS ID [43816]). Ethical approval was obtained through the Bloomsbury Research and Ethics Committee (19/LO/1345). Patient interviews were conducted by PC, Clinician interviews were conducted by AMB between October 2019-March 2020. Interviews were transcribed, and coded for themes using grounded theory techniques …